Thursday, August 29, 2019

LifeBanc Gift of Life Walk - August 17, 2019

Kevin WALKED the 1 mile...good thing he had a comfy green chair to sit down on afterwards...and then we got popsicles at the farmers marketing and he was all smiles.

Actually, I think the sun was just in his eyes in the chair. But it reminds me that it takes a lot more energy and effort for Kevin a CP kid to walk a mile than it does for me. I am proud of him and I love being able to participate in these events together. We missed doing this event with my Dad (heart recipient) but we were thinking about you and Mom while we were on your Alaska trip! Can't wait to hear all about it. 




Preview of Bands - August 13, 2019

Kevin and I had to get our marching band fix. Our local high school has a marching band preview every year of the area schools and I've always wanted to go. They were celebrating 50 years with their alumni band and had 255 participating. It wasn't quite the same as getting to watch cousin Ryan...but we still had an enjoyable night. We got to sit with our neighbor...AKA Madame President for the school board. 






Talker Moments - Summer 2019

We've had some good Talker moments this summer. I love it when Kevin brings his Talker out on the front porch and explores...and then I'll realize he is communicating something. Sometimes it's something he sees...like when he wants to SEE DOG across the street, or WALK WALK (go for a walk...usually to see the dog), or when he talks about wanting to go to AUNT SARAH HOUSE FAST, LOVE GRANDMA. He still likes to say GO FAST DAD to fast forward during the commercials when we watch Wheel of Fortune. I love all these things he's saying especially when he's thinking about family. 

A few years ago, Kevin began communicating that his toy needed new batteries by going into the office to get the screwdriver that's next to the rechargeable batteries and bringing it to me with the toy in need. Well we moved the battery station with the screwdriver down to the basement on a worktable. So when I would realize one of his toys needed new batteries I would take Kevin over to the basement worktable and have him help and I would also use his Talker to show him the word BATTERY and SCREWDRIVER. I did this a few times and then one day I'm talking on the phone to my sister and had to stop because Kevin was saying SLED on his Talker. I was confused because I wasn't sure where that word is on the Talker and what he was trying to say. He was clearly persistent in trying to communicate though. He had a toy in his hand so I finally realized he was saying SLED because it was under Toys and the Sled was red like the picture for Battery. Then he said MAGIC WAND...lol...that was easy to figure out in context...it's a Screwdriver...and why wouldn't it make sense to find these words under Toys because why would you look for the word Battery under Car Parts :) I love how he put that together to communicate to me. 

We recently had a teachable moment that Kevin used his Talker. It was therapy day and Kevin got confused because I packed some toiletry items to use in OT but he knows that packing toiletries means we're packing up to go somewhere. Then I forgot his Talker and realized it before we got on the highway and had to go back to the house to get it. Kevin sometimes has a hard time understanding what I say when he is highly focused on something in his head. It wasn't a good ride to therapy. He was frustrated and upset and I was stressed that he wouldn't be safe in the car. I had a talk with his therapist and she suggested using no music in the car as a consequence. I explained this to Kevin before going home when I got him in the car. He said NOT on his Talker and I said, right, no music in the car. Then he said NOT JUNGLE BOOK. I said, right, no music not even Jungle Book. A little later during the ride home he said DISABILITY. Oh my gosh! I felt like he was saying it happens because of his disability. I don't even know where that word is on the Talker. I've never even talked directly to Kevin about him having a disability...which does seem a little odd now...but I guess he's just grown up with it and I've definitely used that word around him and I know he can take in what I say. So I responded to Kevin, I understand that your disability can make it difficult to control yourself sometimes but it's not ok to grab me anytime and we have to stay safe in the car so we don't have an accident, so no music as a consequence when that happens. Oh boy, I know there's lots more going on in that head of his...wish I could tap into more of it. So as it turns out it was a teachable moment for Kevin as well as for me. 








Summer Fun 2019


Cleveland Edgewater Park
Giant Connect Four with Aunt Marcia in The Flats
Sara comes to visit!

Lion King movie with all the cousins!

Family from North Carolina
Date Night
Port Clinton on Lake Erie

Grandma Summer Fun Days


June 3, 2019
Gorge Metro Park



So proud that Kevin is able to do all these steps 

June 12, 2019 
Akron Northside Towpath





June 17, 2019
Cuyahoga River at Front Street 
checking out the high water




July 3, 2019
Headlands Beach






August 5, 2019
Brandywine Falls
Happy Birthday Grandma



August 19, 2019
Ohio & Erie Canal Towpath Trail
Lock 29 Peninsula


August 26, 2019
Beaver Marsh Towpath Trail



August 3, 2019
Grandma's twin brother and wife from North Carolina
and celebrating their birthday