Nutrition Program
I kept up weekly contact with the Nutritionist during the last six months. She said I win the prize on the most emails. I even began signing off as “Your faithful BM logger”. As I said we did make some progress because back in the spring and early summer I could give Kevin an enema or suppository and nothing would happen. Now I can give him a suppository and a little time alone and it works. We have even gotten to the point where he sometimes will have a BM without a suppository. We also made some changes to his supplement program. Now that we succeeded in getting him to have daily BM’s we want to try to eliminate the use of the suppositories. We are going to try a new diet called GAPS. The Gut and Psychology Syndrome Diet was created by Dr. Natasha Campbell-McBride and has its foundation on the Specific Carbohydrate Diet (SCD). The diet provides a protocol for healing digestive disorders.
Physiological Program
· The Oxygen Enhancement Program/Carbogen Therapy (95% Oxygen and 5% Carbon Dioxide) – The purpose of this program is to increase blood flow to the brain thereby enriching the brain with nutrients and oxygen.
· The Mild Hyperbaric Therapy Program – To increase partial pressure which increases oxygen uptake in the brain and body, improving overall brain and body function.
o Kevin continues to look forward to his time in the “spaceship” every day after lunch for a couple hours. He passes the time with his books and a good nap. Once a week Grandma goes in with him and brings new books for him.
Sensory Program
· Oral Stimulation – presenting different textures in mouth
· Olfactory & Gustatory Integration Program – presenting smells & tastes
· Auditory Training with EASE CD’s – to be comfortable in noisy situations, to not be upset by sounds and to not be easily distracted; to hear sounds at the appropriate volume; to hear all sounds well in daily life and speech.
o This continues to be another one of Kevin’s favorite programs. He loves snuggling with Mom (or Grandma) on the couch and putting on his headphones while Mom reads a book. He is very quick to let me know if it accidentally turned off and to turn it back on. I know that this is helping because last year when family called to sing “Happy Birthday” to Kevin he cried and got very upset. This year he did not cry or get upset…he still wasn’t real sure about the whole thing but he did listen. By the way this happened four different times in one day.
Intellectual Program
Our goal is to continue to increase Kevin’s understanding of and participation in everyday activities. Part of the new program will include teaching Kevin sign language. This has been part of our program in the past but never very well implemented. I think we are both ready to try again!
Physical Program
· Creeping – We are currently doing 400 meters and our goal is to increase to 800 meters a day or 1,000 meters is ideal
· Walking – only as a way of life for transportation and not as part of a program
o It is a little disappointing to take a step back like this after we have worked so hard but of course we would rather improve Kevin’s walking quality and we don’t want him walking on it the incorrect way like he has been. One of the positives is that now I don’t have to worry about taking the time to get us dressed to go outside and drive to an indoor place to walk this winter.
· Reflex Integration Program – to support the organization of the Medulla Oblongata and to pattern and integrate pathological and dysfunctional reflexes into higher level brain stages
Helpers
I kept up weekly contact with the Nutritionist during the last six months. She said I win the prize on the most emails. I even began signing off as “Your faithful BM logger”. As I said we did make some progress because back in the spring and early summer I could give Kevin an enema or suppository and nothing would happen. Now I can give him a suppository and a little time alone and it works. We have even gotten to the point where he sometimes will have a BM without a suppository. We also made some changes to his supplement program. Now that we succeeded in getting him to have daily BM’s we want to try to eliminate the use of the suppositories. We are going to try a new diet called GAPS. The Gut and Psychology Syndrome Diet was created by Dr. Natasha Campbell-McBride and has its foundation on the Specific Carbohydrate Diet (SCD). The diet provides a protocol for healing digestive disorders.
· The Oxygen Enhancement Program/Carbogen Therapy (95% Oxygen and 5% Carbon Dioxide) – The purpose of this program is to increase blood flow to the brain thereby enriching the brain with nutrients and oxygen.
· The Mild Hyperbaric Therapy Program – To increase partial pressure which increases oxygen uptake in the brain and body, improving overall brain and body function.
o Kevin continues to look forward to his time in the “spaceship” every day after lunch for a couple hours. He passes the time with his books and a good nap. Once a week Grandma goes in with him and brings new books for him.
· Oral Stimulation – presenting different textures in mouth
· Olfactory & Gustatory Integration Program – presenting smells & tastes
· Auditory Training with EASE CD’s – to be comfortable in noisy situations, to not be upset by sounds and to not be easily distracted; to hear sounds at the appropriate volume; to hear all sounds well in daily life and speech.
o This continues to be another one of Kevin’s favorite programs. He loves snuggling with Mom (or Grandma) on the couch and putting on his headphones while Mom reads a book. He is very quick to let me know if it accidentally turned off and to turn it back on. I know that this is helping because last year when family called to sing “Happy Birthday” to Kevin he cried and got very upset. This year he did not cry or get upset…he still wasn’t real sure about the whole thing but he did listen. By the way this happened four different times in one day.
· Creeping – We are currently doing 400 meters and our goal is to increase to 800 meters a day or 1,000 meters is ideal
· Walking – only as a way of life for transportation and not as part of a program
o It is a little disappointing to take a step back like this after we have worked so hard but of course we would rather improve Kevin’s walking quality and we don’t want him walking on it the incorrect way like he has been. One of the positives is that now I don’t have to worry about taking the time to get us dressed to go outside and drive to an indoor place to walk this winter.
· Reflex Integration Program – to support the organization of the Medulla Oblongata and to pattern and integrate pathological and dysfunctional reflexes into higher level brain stages
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