Kevin's Healing Journey: 1 month after Hyprocure Surgery

Tuesday, May 13, 2014

1 month after Hyprocure Surgery

Fortunately, we were able to schedule our FHC revisit to coordinate with Kevin’s follow up appointment. We saw Dr. Joe in New Jersey on Friday, May 9, 2014 and he said he couldn’t be happier with how Kevin’s feet look one month after his hyprocure surgery.

In the X-ray pictures below, you can see the titanium stent in the exact position it is supposed to be to stabilize Kevin’s ankle and help to realign his feet. We have done our job well, keeping Kevin off his feet in order for the stent to set in properly with the soft tissue, since it is not screwed into any bone.

Currently, we are having Kevin wear the “boots” with socks during the day as an extra precaution until he is walking. And because he doesn’t wear the boots while sleeping we are wrapping his feet with the bandages at night only to help keep his feet safe from bad positioning.

As I mentioned in an earlier post, Kevin and I have been sleeping together to keep his feet safe during this time. But now we feel, it would be okay to have him go back to his own bedroom but unfortunately, the pattern has been set and it is going to be difficult to break this routine with him. It is difficult to practice “tough love” in this situation because after trying to put him to bed in his room, he fell trying to get out. So I guess this is something we will have to address after it is safe for him to be on his feet, so he doesn’t get hurt. So for now I continue to sleep with my cheek to cheek snuggler.

The next step, before Kevin begins walking, is taking him to the pool for about a week to help strengthen his leg and feet muscles by kicking and moving his feet around in the water. After a few days, we will introduce him to standing and walking in the water. On Saturday, we went to our local community gym/pool place and were happily surprised when they offered all three of us a one week free membership. Boy, is that a big help and as you can see in the pictures below Kevin is loving it! He is spending about 40 minutes in the pool.

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My Blog

This blog was created to keep our family and friends updated on Kevin's healing journey. It is also our hope that others may find this blog to give help and hope to other delayed kids.

About Kevin

They told us Kevin would never walk or talk. But with lots of prayers, hard work, and extra hands, he began walking when he was four years old and we continue to have faith and hope as we wait patiently for his speech to develop. Kevin is now eight years old. He is diagnosed with Cerebral Palsy due to a brain-injury he had before birth that was caused by a stroke. In 2006, before Kevin was 2 years old, we found Glenn Doman’s book "What To Do About Your Brain-Injured Child" that had answers to help children with special needs and developmental delays. We began an individualized home treatment program for Kevin immediately and have been dedicated to our program ever since. We spent three years with the Doman family at The Institutes for the Achievement of Human Potential (IAHP) and now we are with Matthew and Carol Newell at The Family Hope Center (FHC). Twice a year we return to Philadelphia where Kevin receives a neurological evaluation to determine the progress he has made in the last six months. Then they provide us with an individualized, program that puts me in charge to help Kevin develop and reach his fullest potential.

Do You Know a Delayed Child?

The best recommendation we can give to another parent with a special needs or developmentally delayed child (brain-injured, brain-damaged, mentally retarded, mentally deficient, cerebral-palsied, epileptic, autistic, athetoid, hyperactive, attention deficit disordered, developmentally delayed, or down's) is to read Glenn Doman's book What To Do About Your Brain-Injured Child and/or Dr. Coralee Thompson and Dr. Philip Maffetone's book Healthy Brains, Healthy Children. By simply reading these books, you will gain valuable information to help your child which will begin to unlock the potential your child has. And best of all you will learn that there are other options to helping your child that you can do yourself. We would also highly recommend attending the parent course at FHC or IAHP. To read how our journey began and the successful progress Kevin has had refer to the January 2010 blog archive.