Kevin's Healing Journey: Let it Go

Sunday, January 15, 2017

Let it Go

Once the new year arrived it was time to start preparing for Kevin's surgery. This meant getting Christmas packed away and the house back in order, cooking and prepping meals, making books for Kevin to prepare him for surgery, getting other materials ready to have on hand once we are home after surgery, making sure the house is stocked with supplies, and various other household tasks - all of this while we continued to have therapy and other appointments. But I did take Jon up on his offer and for the first time and had a cleaning service clean the house.

All three of us got sick with colds last week. It's not surprising that I got it the worst because I was feeling emotional with stress and worry. Although this is Kevin's first surgery in a hospital - I haven't really been worried about the surgery itself (because I know that is out of my hands) - but I was having a hard time trusting that we have made the right choices for Kevin with this surgery (the part I think I have some control over).

Last week, I was starting to second guess Kevin's toe procedure scheduled for the surgery - then God answered me a few times until I got it. About 3 or 4 days that week, in the middle of the day (normally Kevin does this at the end of the day), Kevin indicated that his toe was bothering him and wanted his shoe and brace off and for me to rub his toe. I had to laugh on the fourth day...ok God I trust you...Kevin needs his toe fixed.

I even had a big freak out before Christmas about having the two surgeries this year instead of all in one. The surgeon talked to me on the phone and I felt better because I remembered how much I liked him and that I trust he is the surgeon for us.

This week there has been less worry. My Jesus Calling book (Sarah Young) daily reflections have had the words I needed to hear every day. And I know my family and friends are praying for my peace and trust leading up to surgery day.

Here is one of my favorite Jesus Calling (JC) days this week.

I sent my Mom a text with some of the words from JC.

Then thank Me for the answers that I have set into motion long before you can discern results. When your requests come to mind again, continue to thank Me for the answers that are on the way. If you keep on stating your concerns to Me, you will live in a state of tension.

My Mom replied back to me:

Carrie could sing you a song about that: let it go, let it go, let it go!

(Carrie is my 9 year old niece)

Then not 5 minutes later my sister calls me (Carrie's Mom) and they serenade me on the phone while they are driving to school with "Let it Go" song from the Disney movie Frozen! I love my family!!!

So I am trusting more that all will be well. Trusting that God has led us to make the right choices for Kevin. Trusting to let it go (sing it with me :) into God's hands and his answers are on the way even though I won't know what they are and I'm okay with that...just remind me if I forget later.

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My Blog

This blog was created to keep our family and friends updated on Kevin's healing journey. It is also our hope that others may find this blog to give help and hope to other delayed kids.

About Kevin

They told us Kevin would never walk or talk. But with lots of prayers, hard work, and extra hands, he began walking when he was four years old and we continue to have faith and hope as we wait patiently for his speech to develop. Kevin is now eight years old. He is diagnosed with Cerebral Palsy due to a brain-injury he had before birth that was caused by a stroke. In 2006, before Kevin was 2 years old, we found Glenn Doman’s book "What To Do About Your Brain-Injured Child" that had answers to help children with special needs and developmental delays. We began an individualized home treatment program for Kevin immediately and have been dedicated to our program ever since. We spent three years with the Doman family at The Institutes for the Achievement of Human Potential (IAHP) and now we are with Matthew and Carol Newell at The Family Hope Center (FHC). Twice a year we return to Philadelphia where Kevin receives a neurological evaluation to determine the progress he has made in the last six months. Then they provide us with an individualized, program that puts me in charge to help Kevin develop and reach his fullest potential.

Do You Know a Delayed Child?

The best recommendation we can give to another parent with a special needs or developmentally delayed child (brain-injured, brain-damaged, mentally retarded, mentally deficient, cerebral-palsied, epileptic, autistic, athetoid, hyperactive, attention deficit disordered, developmentally delayed, or down's) is to read Glenn Doman's book What To Do About Your Brain-Injured Child and/or Dr. Coralee Thompson and Dr. Philip Maffetone's book Healthy Brains, Healthy Children. By simply reading these books, you will gain valuable information to help your child which will begin to unlock the potential your child has. And best of all you will learn that there are other options to helping your child that you can do yourself. We would also highly recommend attending the parent course at FHC or IAHP. To read how our journey began and the successful progress Kevin has had refer to the January 2010 blog archive.