Monday, May 23, 2016

Smoothie

On suit days we make a smoothie for a quick breakfast before we start our exercises and walking.

1 frozen ripe banana 
1-2 Tbsp - ground flaxseed
1-2 Tbsp - chia seeds
2 Tbsp - coconut oil
2 Tbsp - sunbutter
1/2 cup - coconut/hemp milk
handful of spinach or kale







Sunday, May 1, 2016

March & April 2016 Pictures


It may not be the official "Hello, Goodbye window"
but Kevin likes Grandee & Pap's new kitchen window

Kevin's new buddy 




First Communion
Looking at Aunt Marcia's photo albums
Silly Uncle Steve
Lemon!


Spring Zoo Days

We renewed our zoo pass this year. 
I am so happy that Kevin can get out of the stroller and walk around. 
He doesn't complain at all about it or want to get back in the stroller until he needs a break. 

We love meeting some of our favorite people at the zoo.

Cousin Ethan calls it the "Little Zoo"


Lunch after the zoo

I need some practice with my selfies - sorry Kevin
After spending the day at the zoo with Cousin Ethan
Kevin found his Kevin & Ethan Zoo photo book
and was intently looking at it and giggling
Remembering good times with his silly cousin!


A couple cute penguins!

Yay the Bears are playing instead of sleeping!
Tom Turkey strutting his stuff!

Two steps forward - One Step Back

On Monday, April 18 - Kevin had an excellent walking day. I took a video of him walking around the block. It was the longest and fastest I had seen him walk. He had a great stride. I was feeling so hopeful!

On Thursday, April 21 - Kevin walked into his physical therapy appointment and could barely walk out at the end of the session. I think the therapist may have stretched his foot a little too much. So we've had a set back. For 3 days Kevin couldn't walk and couldn't tolerate wearing the brace. I could attempt to put on the brace but as soon as I attached the straps around his foot - he wanted the brace off. By Sunday, he was able to tolerate wearing the brace for short periods of time but still wasn't really walking on it. On Monday, he was still limping while walking with the brace. Such a disappointment!

On Tuesday, April 26 - Kevin had an appointment with Dr. Nemeh. I was so thankful that this was scheduled and was hoping that the treatment would help Kevin's foot heal and get him back to walking. After I told Dr. Nemeh the set back we were having with his foot, he made the comment that he could see a change in his left foot. I wasn't sure if he meant a good or bad change and when I asked, he said "Good" - I wouldn't tell you if it was worse." He said the left foot looked straighter and less curved. Hopefully a combination of Dr. Nemeh's treatments and walking with the AFO brace. During treatment, we noticed some new blood vessels showing in a few different areas of his left foot that we had never seen before during treatment. This means that the blood was flowing and providing oxygen and circulation to his foot - a good thing! Unfortunately, he also found the repeated injury to Kevin's back like in our other visits.

Dr. Nemeh was pretty talkative during our session. He talked a little bit about some projects he has been working on with NASA to develop better treatments. I've heard some of this on the podcasts that he does on Blind Faith Live. I talked about some of the confusion I experience with Kevin and healing. I pray that Kevin is healed one day but sometimes I get confused and I think well this is the way God made him so maybe I just need to accept the way it is. I'll try to remember as best I can what Dr. Nemeh said to me. He said, No, Jesus wants everyone to be healed, Jesus is perfect, His love is perfect, and He wants that for us. People without faith are healed to have faith. Those with faith need to keep growing in their faith. He told me to remember the story of Jesus healing the man born blind in John 9:3 Jesus answered, "Neither he nor his parents sinned; it is so that the works of God might be made visible through him." All for the glory of God. - I'll keep praying!

Photo before Dr. Nemeh's treatment that may
be showing where Kevin's foot was injured. 
I didn't want to lose the progress we had made with Kevin cooperating with putting the Mollii suit on while his foot was still healing and unable to do his exercises or walk any real distance. So I had him stand and help me in the kitchen and walk a small amount around the house and bounce the big green ball. He's really good at bouncing that ball.




Walking in April

It's April and we have had all kinds of weather to walk in - cold, snowy, rainy, warm, and sunny.
Yes, we even walk outside during April showers - but I couldn't hold an umbrella and take a picture at the same time - so you'll just have to ask my neighbors about the crazy Mom and SuperKid out walking in the rain and puddles - our neighbors are used to our crazy antics. We came home one day from walking outside and I found mud on the bottom of Kevin's shoe...only it wasn't mud...it happens! I just have to be careful of wet and "muddy" shoes because it's his only pair.

I love that we have been able to get out of the house and walk around the neighborhood. Kevin has been making excellent progress walking in his AFO brace and he can easily walk around the entire block - often times twice a day. Our current routine is we walk around the block and when we get back to our driveway, I bring out the stroller and we cross the street, when Kevin gets tired of walking he gets to ride in the stroller. It really says a lot that I can have the stroller out and he doesn't automatically want to ride in it until he needs to because he's tired - this makes me so happy!

Now that Kevin is able to walk some distance, this is a great opportunity to wear the Mollii suit (3 days a week for an hour). Kevin was pretty mad when I wanted him to wear the Mollii suit - it's about impossible trying to get a skin tight suit on him if he doesn't want it on. But now we have a good routine putting it on first thing in the morning. He spends the first 30 minutes in the suit helping me in the kitchen - making and eating a smoothie and unloading the dishwasher. Then we do our standing exercises and stair exercises. The last 30 minutes in the Mollii suit we walk outside - again this progress makes me so happy!

The physical therapist says we want to see Kevin walking with a good stride, where he is able to get one foot ahead of the other foot while walking - instead of short shuffle steps - this is not only good form but also will help stretch his hip flexors. Some days are better than others. Sometimes he will have a good stride if motivated to see something and sometimes we'll have an off day if he's too distracted while walking. I've been able to capture a few photos of his good stride. I even noticed in the photos that his arms are down and it looks like his arms are swinging in a cross motion too.

A cold day

He looks so casual and relaxed in this photo
Walking at the park to the playground
Smiling on Mollii suit day!
Wow - look at that stride! 


AFO

Here is a close up of Kevin's AFO (ankle foot orthotic) brace for his left foot.


Part 1
Part 2
A high heel wedge to fit his foot positioning 
Part 3
Shoe to fit over the brace
Part 4
Right shoe with some added height to balance out the left




Sunday, April 3, 2016

A Blessed Easter 2016


Welcoming my dear friend into our Church

Celebrating Easter with the family in my parents new house
Grandkids


Getting ready for the Easter Egg Hunt

My first Starbucks drink (chai tea) with my niece to celebrate her birthday